I wrote a post about this a few months ago but as a media volunteer for Beat, I took part in their waiting times survey about my experiences and today it has been revealed that a large amount of people have waited for treatment for more than six months. The charity are now calling on the government to do more to help people with eating disorders.
Susan Ringwood, the chief executive of Beat says “Eating disorders are fatal in up to 20% of cases. That’s the highest death rate of any mental illness. We know that when people have to wait a long time for treatment, their illness can get worse. In the most serious cases, people’s lives can be lost. We were shocked to find that 26% of the people we spoke to had waited more than six months. We want clear waiting times to be set, so people can know when their treatment is going to start.”
Waiting lists for any treatment does really get to me because it is as if they want the sufferer to get more ill. I understand why there are waiting lists but for eating disorder treatment, it can be even more difficult for the sufferer and their family and for some, the waiting list is around 8 months to a year and by then, the sufferer may get severely ill.
After being discharged from one unit, I had to wait a year to get assessed for another one and I was not getting any better whilst waiting. In fact, I got severely worse to the point where I just wanted to die and could not even function anymore. Even drinking water seemed like a scary concept. When you do eventually get help after waiting for a long time, you just feel like you are past help, which explains why it is so hard to get better. The longer you leave a patient waiting, the harder it is to get better. All the sufferer wants is help whether they admit it or not.
Care minister Norman Lamb says this has to be a “very urgent priority”. He says “In mental health, we don’t even know how long people are waiting, That’s why this survey is of great value, because it demonstrates the seriousness of the problem. I want to get to a point where, by 2015, we introduce access standards, so that people know how long they should be expected to wait as a maximum” but he admits that he does not know whether he will achieve that yet but will try.
Another thing I would like to point out is that eating disorders are mental illnesses but some specialist units focus merely on monitoring the weight, behaviours and the intake and of course that is the main issue that does need to be dealt with first but some units, not all, do not provide proper psychological help straight away. They just give you a few antidepressants and that is it. I feel like if I get my head sorted out first, then perhaps I would do better in terms of recovery. But, of course they put you on a waiting list and more waiting lists and more waiting lists. I do not understand how I can get better if proper therapy is not put in place. Eating means nothing if you are not mentally better.
I think treatment should be offered at the first sign of an eating disorder. As soon as a patient shows signs of an eating disorder, they should put in place a therapist, a dietitian, a psychiatrist, a nurse – everything they will need in order for the patient to get better. When you have eating disorder, all you need is the right support and sometimes I feel like I am not getting that which does hinder my chances of recovery.